I visited a health forum recently. I figured that others must be going through the same difficulties as me. This forum had two real life nurses on it and one suggested something I never thought of. They suggested writing to my local MP. MPs tends to have contact with the primary care trust and also sometimes know of chairities that can help so I sent a email to my local MP. The response was quick I'm glad to say. Here is just a short extract...
I am very sorry to hear of the problems you are facing and I am veryhappy to help. I will need some more detail such as when you were turned down who your doctor is etc.
They have invited me to a surgery to discuss it further. They also suggested contacting the primary care trust directly and asking about their policy. At least it's something! The backing of an MP would help my case!
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